If you would like to participate in research, become a expert patient blogger, or reach out to our team for a donation please put your information and purpose for contacting down below. Opt in to subscribe if you would like to receive periodic updates about new research projects, research participation opportunities, and MARC-EDS events.  You can also fill out the form below if you have a question, comment, want to learn more about expert patients or contact us about anything else without enrolling or subscrbing.

​

Please note that we are not a fundraising organization. Please complete the form if you have questions about monetary donations and we can have someone reach out to discuss options.